February 9, 2013
Okay.... so they put different units of cells in your body. If they had done a special blood test at day 7 they would have been able to identify your remaining cells, and the two babie's cells. At day 14 it would have been just the babies. At day 21 only one set of cells should be there. One of set fades away and one become your new marrow. They have found that if they use two sets, engraftment happens faster. How many of these transplants have they done? the Double cord?
You will know when they are working because your mouth will start to feel better. Love the picture of the cats. It will be over soon.... This is the water we have here that is only water and some natural flavoring...
unfortunatly i'm the 4th person in this clinic -i mean double cord blood tranfer- but in our country there is no experience about that.. the doctor who is living in israil was recommended my transfer protocol.. my own doc. consulted him.. and i don't think that they made this special tests..
and also there is no flavoured water in markets :)) there is lots of brands of water but just still water.. i started to eat a little..
do you have any idea about if the engrafment not happen?
he is my husband.. we got married just before 2 days ago of the relaps :( this photo taken this agust in my first remission.. now he is in İstanbul (has to work) and me at Kayseri..
he is my husband.. we got married just before 2 days ago of the relaps :( this photo taken this agust in my first remission.. now he is in İstanbul (has to work) and me at Kayseri..
i miss him so much..
February 10, 2013
Okay, you are engrafting, I can tell because you are eating. When you see the doctor again, ask him what your Monocite numbers are.. They are a kind of white blood cell that they can count before they can count the neutrophils.
So I have seen lots of different kinds of results of a double cord blood. I think a lot depends on who healthy you were before relapse. I love your picture and can see that you looked great and I am sure felt great.
One young man still has both sets of cells in his body. Both engrafted. They were going to do another transplant but decided to wait and see. He has gone home and seems to be doing fine for now.
Some have engrafted really fast but did not live a year becasue they were so sick before the transplant.
I have not seen anyone where they did not engraft. 42 days is the number they used to use when people were only given one unit of cord blood instead of two. They have not done very many of these transplants in Seattle. We were number 60. But they are very sucessful.
Hang in there. Eat, Drink and maybe when you are done, you can start a company that makes the good infused water.
If you send me the hospital address, we will use that...
Take care sweetie
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