In a weird difficult and not the most healthy way. I feel like there is collar around my neck and if I get too far away, I am yanked back. I reach to the edges of the universe only to be snapped back in with great force.
I push Meb out as far as she can go and she seems better at free floating than I am. So, every single day, I try something to free myself from the deep gooey morass of Cancer World.
List of things to do. Then one appointment with the Kidney Doctor and I loose my ability to finish the simplest of tasks. Going to try again.
Stuff in places it should not be. No apparent reason, waiting for more analysis. Possible way to help the kidneys be smarter, waiting for the end of Prednison and Siriolimus. Best medication also lowers blood pressure so they don't really want to give it to her at this point. Child would be a slug.
So More waiting.
I am going to do some laundry, my mom is coming to visit and will be going to see Cher with Mary-Elizabeth. Should be a fun week-end.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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June
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- Slowly Sneaking Out and About
- Great Crow Cacophony
- Waves of Pain When a Child is Gone
- Multiple Uses for Weird Things in Our lives.
- Childhood Cancer...... Rare? Depends on your pers...
- Hoping our Lasts.... stick this time.
- One less Portrait of Dorian Gray is in the upstair...
- Lots Out there.
- oH mY gODDDDDD Good News
- Shifting Focus
- Just Give Me the Answer!!!!!
- To Vaccinate or Not To Vaccinate... WE have the lu...
- Music is back.
- Fault is in our Star? or how did it come to this....
- Family and Friends can only stand it so long.
- When they die, are they really gone?
- World Cup is Like Childhood Cancer
- Life and Death keeps happening.
- Lulu Update
- Hoping for Good Results Tomorrow.
- Sometimes things just don't change but then that i...
- We all know the Waiting and Not knowing is the worst.
- Sometimes it only takes ONE
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- So this is how it goes...One thing leads to anothe...
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