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Wednesday, August 27, 2008

Went To Idaho, Loved it, Came Home

Crew Started on 8-18-08,
School Started 8-25-08
My Hillary Hoodie became obsolete on 8-28-08. I think one of my Idaho Cousins has it and will not even tell me.
It might be my brother's birthday.
I have to go pick up laundry soap and I don't do laundry
I spent a week leaning to be a mediator. Now there is training I could have used about 100 years ago.

I floated a river and lived to tell about it. Floating is not the right word.

Life is grand.

Tuesday, July 29, 2008

The Bird is on the Nest still

This is not the where the bird is but is just a great picture of Central Idaho as you head out of the canyon by the Payette river and head toward Donnelly and McCall

A robin built a nest on top of your trellis. I noticed on the 4th of July. Soon there after she began to sit. She has been there way way too long in bird world but still seems to have eggs. We have seen no blue bits of shell or heard any noise of demanding babys. She is also still not diving at us.




M-E suggested that she was perhaps a single mom that had not had the 'Birds and the Bees " discussion.




I checked a couple of times and she was gone yesterday. I was surprised that it made me sad to have her gone. I was looking forward to watching her raise this family. I had already planned to make sure we don't mess with her nest this fall when we deal with the grapes.




But I checked this morning and she is back. We shall see.

Sunday, July 20, 2008

She feels like everyone is dying

I picked her up at the bus yesterday. She had been to camp for 9 days with Laura Breshock. No Whitney this year. She was tired but clean. she had received a call and knew that her surrogate grandfather, Richard Davis had died after a very complicated and nasty battle with some new kind of infection.

He has been a wonderful presence in the life of Mary-Elizabeth. She felt like he was another grandpa to her. She used to go to Camp Grandma with Whitney on numerous occasions. That sort of stopped after she was diagnosed but she loved him and knew he and Louis cared endlessly about her. They brought her a huge stuffed flower when she could not have real flowers and of course the famous Road alligator. Ours appears to be stuffed, green and plush but then when you are driving along the roads of the world it would be logical that thy would be black to fit in to the environment.

He will be missed.

Friday, July 11, 2008

Thursday, June 26, 2008

Friday the 13th Trip to Idaho











We left Friday the 13th. What was I thinking. Road Trip...... We were traveling with Liz and Sopie and Elvis Fluffbucket. Their purpose was to pick up Delila Fluffbucket. We stopped at places like Mel's 24 hour dinner in Yakima. Free Pancake day. 14 hours later we arrived in Boise. (Oh, Liz would not stop at the Hungry Red Neck Cafe close to Lime Oregon. It might have been wonderful. But then we will never know. Drove through the College of Idaho and discovered the feed lot is gone and replaced with Trailer World for all your horse hauling needs.








We collapsed into bed. I was able to watch the last bit of Battle Star Galactica. My secret obsession. Then up early. Aunt Mary was first on the agenda we were able to see her. She was very weak, not really able to speak. I realized in an instant that the person I had spoken to a week before had left. We said our good byes, spent some time with Logan and the rest of the gang and headed on our way. Off to pick up the pups and then up the road to Riggins.








I guess we all return home, just like the salmon headed up to spawn. There is something deep in my soul that calls me back to those deep canyons, and angry rivers. I love the sounds and smells and the feel of pine shade, dusty yet inviting. I love to find places that know what "fry sauce" should taste like and how to put together a burger. We stopped for a bit along the Payette River. Hot, yet refreshing. Cold water that is trying to escape the canyons.






Through Cascade, McCall and then into Riggins. Population 404, two steakhouses, two bars, a grocery store, mini mart and a place where pesto was defined on the menu and a beautiful Best Western. The hotel sits on the point where the BIG SALMON meets the little salmon. Lots of fisherman, bikers, and fly catchers of the bird variety. We took a big heavy sigh and stayed for two nights.






Short visit with Cousin Mary and Barney, a trip of the Big Salmon. A roadside picnic and then a long haul home.






Those who traveled with me noted that I had a story for every bridge, had lived in every town, knew every rock and could comment on almost anything that passed before us. I completely resisted telling the story of Falling Rock.




So this is what I observed on my road trip back to Idaho this decade:




College of Idaho is smaller. The pick-up trucks are bigger. No one was wearing a Hillary for President Hoodie.

Thursday, June 19, 2008

Dear Aunt Mary



Lung Cancer. Bad Bad. Treatment, not so great but maybe it bought you some time. Please know that there are lots of things I didn't know about you and while they always appear in the obituary I wonder if they give the true picture of what a person's life means. Since I don't know your middle name or your birthday or place. Since I don't know when you were married or even how long you and Logan lived in that house on Alamo. I guess what I have to say goes like this.






You were always there when we visited Boise. I do remember another house in Oregon but for the most part it was the red brick house on the corner with the ever growing tree in the back yard. You always had coffee at hand or a number of other options. Never did you refuse entry to a gang of family, a wayward brother and his wife about to add a recently born child into their family, a group of family after a funeral, a college student, a teacher from a Dietrich, a law student, a visitor from Seattle.






You were always busy. Family, travel with Logan, work on lots of Charity things. You did the Cross Word, balanced the books, kept track of the important things in the world. You were a very ardent republican but those of us from the other side loved you anyway. You remembered everyone, loved to throw a party, a shower for a niece from Seattle. You were simply warm and gracious.




There were very big disappointments in your life but you "soldiered" on. You saw the big picture but could focus on the little important things. You did much for everyone but when an act of kindness came your way, you never forgot it.




You will have taken a lot with you. Lots of family stories, history, good old gossip. You have taken a big part of Logan's heart and soul and much of his memory. He is not very happy that you have left but he knew you needed to go.




We made it just in the nick of time to see you. I hope you knew we were there. I realized at the visit you were beyond our reach so we will reach out to Logan now. I dispatched Dad and Mom to visit. I think that was good.




Mary-Elizabeth cried when we left. Her visit to you was hard and maybe I should not have taken her. I thing that we have to teach the lessons that death is not a bad thing. It is not a fun thing for those that are left but it is not a bad thing when it is time.




It was time. Thank-you for waiting for us to stop by and say hello before your journey ended.

Thursday, May 22, 2008

Concrete Proof


In 2004, Mary-Elizabeth and Whitney were about to sign-up to begin rowing. Mary-Elizabeth never was able to start. Mary-Elizabeth has visited and watched and supported Whitney on occasion. She took a rowing camp, went to crew one day a week and then two or three and then 4 days a week. She has been very reluctant to row in a race.. She did not feel strong enough to do a 2K or even a 1.5 k race. She felt she would let down her team. She did not trust her body. She did not feel like she could face the disappointment. She would get all geared up and then..... a cold that lingered or a set of hip flexers that would disagree with the entire process. Little steps forward, big steps back.






A couple of months ago she started to question why she was rowing, was something she wanted to do or something that she was doing for me. If it was so important why was I not more involved... How would she be able to do all her homework and row next year. What if.....






Well I had a hissy fit earlier this spring and told her she had to row in at least one race. It was time to get off the fence and commit no matter what hurt or the blisters or her lungs or the fact she was not 100% recovered from __________ fill in the blank, PMS, finals, watching too many Lucy shows. Any way she was ready to do it.






She worked and was on the team and in a boat and doing well and then Belle and Karen left a little cold. Started out just feeling funky, then very tired and then a cough and then and then and then. So she was out of the boat. Her coach was less than pleased but then they see lots of potential in M-E they see how hard she works and how much she wants to succeed. She works well with other and does lots of things.




Well she didn't row at Brentwood in Canada. (I had a great time and tried local bread and cheese and bought wine from the Cowichen Tribe.) She was determined to row in Regionals in Vancouver Washington. So, lots of rest, vitamins, good meals and lots of prayer.




Off she went on the bus to Vancouver. I followed the next day. She did not row until day three but hung out, became more nervous. Fretted and worried and kvetched and did home work. It was "oh my god" hot. 105 in the shade. Then Sunday came.




I was up and out the door by 7:00 am and there was no coffee but room coffee. I arrived and helped with breakfast and other things and then we waited. Boat after boat launches. Noisy Holy Names cheering happening, boats coming down the course and the I hear the they "hot seated" No endless cheers for them. They entered the boat just as the previous group ended their race. They were off and we had nothing to do but wait.




It takes about 40 minutes from launch to start. Everyone was lined up, they headed down the course. They are more than 2000 meters away and it is hard to tell they have even started, let along what lane they are in, so where they are does not seem to even matter at that point. All you can see is a glitter and flash.




As we they were coming down the course, I was standing with a couple of more experienced mothers. I was telling them that this was M-E's first race and that she just didn't want to be last. I learned from a very small, cross wearing, medal (at least one of Our Lady of Guadalupe) that the correct term was DFL. Dead F((((( Last. .
As we watched and cheered and prayed it became very clear that they were not going to be last and then that they were going to place. I held my breath as she and her team came in third. I didn't know that a medal came with it. One of the mother's was very worried about whether or not there would be a medal. I told her I was just glad that they were not last. I later found out the her daughter was a child that really needed this sort of validation. She was very bright but did not do well socially but was determined to stick to crew. M-E had been in a boat of juniors that had never won a race. They had struggled but stuck to it.
As we drove home I asked her about the experience. She told me she had never felt anything like the adrenalin rush at the start of the race.
"Mom, I found a great use for anxiety and adrenalin."

Sunday, March 09, 2008

I Am Done with being a Leukemia Mom but we are not quite finished.

Yeah, here we are in March 2008. Silly time for a post. Well sometimes post just have to happen. I guess we are both sick to death of living in this world. We found out last week that we still have lots of left over baggage.

Life has been good. Trips to Mexico with Dad, Mom's new hip is settling in..... She is still receiving straight A's at Holy Names. The flowers are up, some gardening is happening. The dogs are good. The Sibs and Parental Units are great. Mary-Elizabeth does not seem too interested in driving... What more could we ask for???

Well, lest we forget, we were drug back to scary world for a few hours. Wednesday afternoon about 2:15 p.m. I was in a mediation. I was interrupted by a call from M-E. She was crying and in pain. She told me her stomach hurt more than ever and she had hives everywhere. I said I was on my way.

I ditched the mean people that were never going to settle and headed to the car. I tried to call Sister Dorthy but she was on the phone. Little did I know she was on the phone with 911. By the time I arrived there were two ambulances and school was letting out. The ambulances were clogging traffic and I parked in a sacred "No Parking Zone." I was immediately accosted by a the parking police who backed down when I explained the ambulances were my daughters fault.

I snuck in the back, looked for a second for the elevator and then headed up three flights of stairs. I found Sister Dorothy and my scared and sick child. She was in the presence of four cute EMT's. Her tongue had swollen and she was crying and itchy and just miserable. I intervened, and let then know that IV Benedryle was probably not the best choice and convinced them I could transport her to the hospital as well as they could. No IV, No ride in the ambulance.

I had been in contact with the Hem/Onc clinic and they were not about to let us come in. I was not worried about the stomach ache and wanted a blood draw to see if I should become a real basket case. Evidently they don' see everything as being caused by chemo and cancer like I do.

We went to emergency. They got us right in and gave her some more drugs and some Hydorzine, another form of Benedryle. They also gave some of my least favorite steroid, Dexemethozone.
She dosed, I worried, they poked and we were finally able to go home. She cried and slept and I worried.

It was clearly an allergic reaction to something. What?
we don't know. Will it come back? Maybe. Was it a fluke? Could be.

One thing we know for sure, the histamine part of her immune system is back with vengeance.

Friday, November 30, 2007

14 Year Olds Don't Get to Make Some Decisions

I don't care how "mature" a 14 year olds might think they are they don't get to refuse medical treatment when there is a great chance they can continue to live. They just don't. Don't try and tell that to any of the 14/15 year olds in the car pool this morning. They are so certain in their beliefs and what is right and what is wrong. Well 4 years ago they believed in Santa Clause and the tooth fairy. It it was the parents refusing
the treatment, they would draw and quarter the family and put there pictures on the cover of People Magazine. Congress would be called back into session and new laws would be passed.

We don't let children vote, or drink or drive. We make them get their vaccinations. We drill their teeth and put helmets on them. We make them buckle their seatbelts. We make them go to school, of some sort. We make them brush their teeth and take baths. We make them wear cloths to school and we make them take ALL of their antibiotics. We make them eat, some times healthy food. We make them leave the house and interact with the world. We don't have long discussions with them about drug use and abuse, we just say NO. We tell them they are wrong and in most cases we enforce the rules. If the kids get out of control we send them to counseling. If that does not work they end up at OUTWARD BOUND. Or as the kids now say "He has gone on 'VACATION'".

As anyone that has read this blog knows, kids with leukemia die. Kids that are treated for leukemia sometimes die. Kids that start the treatment and then are not transfused die. The young man that died this week did so of suffocation. The child has a hematocrit that would not have kept a snail in hibernation in the winter alive. He had no oxygen in his system. His red blood count dropped like a rock. His leukemia was really scared of chemo therapy, his bone marrow was on the run. He might have had a really great result.

What really scares me is that now the precedent is set. Kids at 14 during the worst treatment of their lives get to be recalcitrant and just say "NO". I think the judge made the right decision for this child to let him die given his body had been robbed of oxygen for so long but what will it do for the rest of us that have kids that may need treatment.

Remember, it has only been a few years since they believed we could kiss it and make it better. We would not let a child walk into a busy street even though "he accepted what would happen."

Sunday, November 25, 2007

I still need to add to the this Blog

I want to think we are done. That I have written the last of this part of the story. I think it is part of Cancer Denial. A little known or documented syndrome. It is sort of like the day we when to see Dr. Ojaman and schedule the biopsy of the growth in M-E's scull. At that time he shared part of the waiting room with the Hem\Onc clinic. I could see those really sick kids and remember saying to M-E how thankful I was that she did not have cancer.

It then took me a long time to think of Luekemia as cancer. They call it a liquid tumor. How can you win a battle against one bad cell that decided it was a good idea to go awry?? It makes finding Weapons of Mass Destruction look like a cake walk. It is such a strange way to think or in this case not think. It is just so much information. So much that keeps us from sleeping and thinking and being able to focus.

A tumor is just that, a large, ugly thing that can be attacked with lots of really great killing things. A wayward bone marrow cell. Now that is something very very scary. A cell. Something we can not see. Something we can touch but would not know we had done so. Sort of like faith and grace. We know they are there but then we can not see them, we just have to know.

Friday, October 05, 2007

Been on a cruise.
Lost weight., go figure.
Tucker has learned to go downstairs in the basement.
The tomatoes need to be picked.
Winter is coming.
I have been forced to turn on the heat.
Mary-Elizabeth does not have Mono but lots of her friends do.
I am thinking it is time to order a turkey.

Translation: Things are Good. Life is Normal.

Tuesday, September 11, 2007

I thought I was done but I think this is much harder to escape than I believed

I thought we were done. I thought I had posted the last post on this site. I thought ........ guess what, I was wrong. While she is done, her ANC is very high, I guess the immune system is more than ANC. It involves lots and lots of other stuff. She can fight off stuff, but once something arrives, it likes to stay a bit longer than with others of us that have a good system.

She has a cold. She can't talk, she feels miserable, her throat is sore and she is very unhappy. She is in bed.

So, I checked in. Yep.... she is normal. She is post treatment but needs a year to really get back to herself. So now they tell us. I will relay the message and hope for the best for her.

She becomes so freaked when she is sick. She told me yesterday that she just worries and becomes depressed. Who can blame her. Oh, well. Chicken soup tonight. (Mexican of course).

Sunday, August 26, 2007

End of Treatment Party...... The Review and other Ramblings

Perfect. Perfect weather, Perfect place, Perfect group, Perfect amount of food, Perfect timing.

What more could any one ask. I took a moment every now and then and just looked around. I saw people that had helped us in so many ways do what we needed to do. Sometimes it was a phone call or a roasted chicken. Sometimes it was an e-mail or a varied box of presents for M-E to open on the bad days. It was a basket of magazines and balloons, a bouquet of cookies or just a hug when I was weary. A Tully's card, a chance to go to the grocery story.

Frederica was a miracle. A life changing event.

I know that I have said this before that this blog is done. We have told the tale of Frederica, we have whined and complained and asked for prayers and burned enough candles to create global warming. We have been on a very very long journey and for once this really does feel like a stopping point. A time of new beginnings.

M-E starts her sophomore year tomorrow. This is the first start of school that is not under the Leukemia cloud. Only a few appointments this year. No worries about chemo and radiation. No scheduling of port removal. No hair to sweep up. Just a normal year.

It is time. I am facing my own little adventure this fall. Much less dramatic. I might jot a few words now and then. I am sure nothing earth shattering. Our ties with the hospital are strong but not moment to moment. We will keep in touch with the hospital and lend a hand to any family that needs to know what to worry about and what to ignore when they get the invitation to Cancer World.

We will never truly leave this behind but for now we are just knowing and wise visitors, Elder statepersons in Cancer World.

I will put some pictures here from the party but this is pretty much the end of Frederica's Wild Ride. It is time to make August a time of happy things, road trips, friends visiting, tomatoes ripening. September a time of new beginnings. Friday the 13th just another day, (unless there is a full moon).

It is time for me to spend some time doing some work making this blog useful for someone who has just started. This backwards stuff is hard for someone that just heard the word ANC or PIIC line for the first time.

Thank-you for everything. Thank-you for your prayers and thoughts and gifts of time and food and friendship. Thank-you.

Tomorrow is another day and it starts at 5:30 a.m. I wonder if I have any coffee. I am going to need it before the carpool gathers and we head to Holy Names for the first day of her second year in high school..........

As always, we need lots of prayers, and candles and good thoughts coming our way.


Tuesday, August 21, 2007

COME ONE COME ALL

BIG PARTY DOINGS......

WEATHER SHOULD COOPERATE. EVERYTHING IS ORDERED. I MAY ADD TO THE PLATTERS.

WE WILL HAVE A GOOD TIME.

4:30 TO 8:30 P.M. THE 23RD OF AUGUST. LINK TO LOCATION SITE ON TITLE.

Sunday, August 19, 2007

Visions and Healing


It has taken me three years to realize that since August 14th, 8:35 a.m 2004, while sitting the deck in Lake Chelan drinking coffee and talking with my friend Judy Sommerfeld, we have lived in an alternated universe, CANCER WORLD . More precisely, CHILDHOOD CANCER WORLD. It is a parallel universe. No one can look at us and know we have been given the secret pass words. There is a whole world that is way to familiar of our secret language and shares our fears and our hopes and our sadness.




In CCW, there is a different reality. It comes with a greater appreciation for each day, moment and laugh that comes from a child. People can read about it and listen to stories about it. They can empathise and grieve and feel the same helplessness that each of us feel. But no matter what, they can only really "imagine" what it is like. The best description in the world does not explain the true flavor of a ripe mango or bite of crisp lettuce. I always remember lots of my friends have lost parents. I realize I will not really understand that particular pain until I have the same experience.




Those of us in CCW have a different understanding of what is happening with the little girl Gloria Straus. She is in ICU having been in a medically induced coma for more than a week right now. A very sensitive and involved Seattle Times Reporter Jerry Brewer, has been writing about the story. He is posting a couple of times a day about her plight and the paper has been following the story on a pretty regular basis. Gloria and her family ran out of treatment options in April and are now relying on faith, prayer and pure determination.



Gloria has had 5 months of some ups and downs. She has been home and able to be with friends and family. She has been able to run and jump and play and just laugh. She has had five miracle months.


She is on a number of machines and tubes and had her heart restarted while in route to the hospital. I am sure lots of people are saying "enough is enough" . It is something those that watch say and do so with only the most gentle kindness. Only the family can make that decision. If that is the final decision, it will be made when they have had the time to know it is right for them. I have never had to make that decision. My most trying decision was what kind of juice to try and entice M-E to drink. We always had options and hope and alternate protocols. While we inhabit the same world, we are on different floors.



Apparently each member of the family has had a dream about Gloria and they see her walking. She is visiting them all. She has even visited Jerry. I do wonder if it her way of telling them she will be okay once she is released from this part of the journey. Visions are very much a part of Cancer World. I think we are a people that used to be more open to them and were guided by those very important messages that came to us in dreams and during special waking times. Once you have been knocked out of our first lives, they become possible again because everything is so so upside down.


Mary-Elizabeth had a vision.


I can finally, finally talk about the healing vision M-E had at her Healing Ceremony. She was finally able to deliver the message to Rick Boyle and so here goes.



Gerald King, the Chief Medicine Man, told M-E that she might see things during the ceremony. She settled into her seat, Buffalo, Deer, Mountain lion, hides, covered with corn pollen and sacred soil and the chanting began. Waves and Waves of repetitive sounds, sound I would love to be able to listen to on a regular basis. After the ceremony, after the tea, the blue corn meal mush, after the feast, M-E was very very quiet. I asked her if she was okay. I figured it was just nerves and exhaustion. We had done a lot and had been many places.


In the evening she finally began to talk.


Mom, I saw something.

Where?

During the Ceremony. It was sort of scary.

What was it?

(Insert some soothing word, words of encouragement, general platitudes about how this is normal while freaking out and wondering what was in the corn pollen.)


I saw the moon. Very clear and full. I saw Joseph Boyle and he talked to me.

(Gulp, okay, act like this was a normal vision and ask)

What did he say?


He told me he was okay and to tell his dad that he was fine. He told me that he was always with them and that they should not worry. Then he told me that he had been with me and that I would be okay.


What did he look like?

He was older, like 12 or 13.


Mom..... tears, Mom........


What does a mom say. I don't remember what I said but most likely my usual.


Thanks for telling me, it is okay. Everything will be all right.... Rock her back and forth, Rock her back and forth.


It has been a year since all of that happening. I tried to get her to talk with Mr. Boyle. I certainly would like to hear from my child that had died. She was finally able to tell him.


She was testing Joseph B. to see if he meant what he said. I think her ability to verbalize the message means she is starting to believe the part of the message that meant for her. She is going to be alright.


Visions and messages have great power.

Saturday, August 18, 2007

Dr. Tracy AKA DR. FISHNETS......











I know I babble endlessly about the good things that arrived in our lives because of M-E's battle with Leukemia. I just don't know how not to.
Dr. Tracy Hentz was one of our most precious gifts. She was brand new as a fellow. She was 13 days into her first rotation as the In-Patient Hem/Onc fellow and she was Children's gift to us. It sort of went like this...

Good Morning:

I am Dr. Deb Friedman. I am the inpatient Attending. This is YOUR fellow Dr. Tracy Hentz. She will be yours for the entire time you are a patient here. Quite frankly, I would have rather had a high-speed connection and a very stiff drink at that point in time but I have since learned she was the best gift of all.

She cared for us, she fussed over us. She watched and worried about everything. She came to see us even when we were not her job for the day. She took the time to do all the extra things that helped and asked all the really insightful questions about how we were doing and would fight for us to leave when we were sick to death of being at the hospital. (She only yelled at me once when I didn't take M-E to the emergency room when she had a fever. I am still in trouble for that one. But I knew what it was and I just could not face 378 hours of waiting.)

Tracy also became our friend. At some point I took great comfort in the fact that she was willing to be more than our doctor. It was a sign to me that M-E was going to make it. In some of those very dark days of worry and lack of progress, she was going to be okay.

We love her so much that we sent her to live with Belle and Karen in Chinlee. We could not let her stay here and be unhappy and Tracy will be a great fit for the Dine' (Navajo). She listens, she has a special ability to figure out what people really need and it is not always medicine. She will value the healing ceremonys and learn from the Medicine Men. She will be able to help with the cancer kids that will need her and she will feel like she is not too far away.

She has made it to Chinlee and has unpacked. She has discovered that rattle snakes and tarantulas are nothing compared to the Black Widow Spiders. She is settling in to walks with the REZ dogs and red dust. She is bonding with the local grocery story and grieving about the loss of good coffee. All in all it is good.

Before she left we gathered some people and decorated Waiting for the Interurban. Here are the pictures.

Tuesday, August 14, 2007

August 14th 2004-August 14th 2007

In one hour and 45 minutes, we will mark the moment in time that we entered Cancer World. It is odd, that now looking back, it seems like only yesterday yet I know it has been a long and arduous journey. We are some of the lucky ones. We are about the celebrate the end of treatment and launch M-E into her sophomore year at Holy Names. I love when the good comes with bad.

Cancer World: my new title for the realm we inhabit. It is not a bad place but it is a place that only a select few visit. Others can drop by and lend support but it is sort of like motherhood, until you have a child you are not a member. (Dads have their own world no matter how hard they try.)

Cancer World never lets you leave. It is sort of like being born Swiss. Once Swiss, always Swiss. You can move on but there is always a mark, a secret handshake, a language that only a select few are allowed to know.
It is not a bad place. It is a place where you learn to receive instead of give. You learn to trust and be flexible. You learn to forgive yourself in ways you never knew possible. You re-adjust your priorities and your expectations of life, people, and the world. You learn that planning is for people with nothing better to do but believe they have an iota of control over their destiny. You learn about the fragility of life.

Your learn that children die. That medicine is not the only answer. That God answers all prayers but not in the way you wish. That parents are so so strong but the children are stronger. You learn that death is not the worst option but is to be accepted, sometimes. You learn that sometimes it is the best answer.

Today, the day we acknowledge three years of being in Cancer World, another family's battle with cancer is being played out in a very public way. Gloria Strauss has been the subject of a Seattle Times series. She is at Children's as we speak in ICU and there is enough pain and prayer to cover the whole world. The title will take you to Jerry Brewer's journal. He has been with the family writing about their journey for more than 6 months and is spending lots of time at the hospital.

Today would be a good day to say a number of prayer for the family and for Gloria.

We are just very thankful that this is just an anniversary.

Sunday, August 12, 2007

END OF TREATMENT PARTY...... COME ONE, COME ALL....


We are gathering at the Lake Union Crew facility. It is really a "cruise ship" that has to be taken out to maintain it's "SHIPNESS' We have found brick oven pizza guy. He will be making pizza for everyone and there will be goodies and other kinds of food. All Mary-Elizabeth's favorites. She is refusing to let me make jello. She also wants a chocolate fountain and I am just refusing to do that..... I am not sure why.


If you can come great. Let us know so we can make sure you have all of your food and beverage needs met.


END OF TREATMENT...... WHAT A BLESSING.

Thursday, August 09, 2007

Granma Mary is 75


For some reason this birthday counted. She is a very funny lady. Sometimes she is practical and dismissive of hoopla. Sometimes she shows the part of her that would be Grandma Foster and wants the celebration. 75th was one of those years.


She called and wanted me to get on the Internet and arrange for tickets to see the Rembrandt exhibit Portland. Then she wanted to stay somewhere that they did not take dogs. They she wanted train tickets. Then she invited us. No one else. Okay, task accomplished.


We all trekked to Portland. Stayed at the Embassy Suites and even made dad eat Chinese food. By the time we arrived via car, Mom had read the history of the Multinoma Hotel and knew who made the china. She had talked with half the staff and was organizing everyone. She called housekeeping no less than a half a dozen times and was fully supplied with such items as extra radios and a pillow or two.


We went to the museum, the Chinese garden, shopped a bit, had good food, found a french guy that made good coffee, spent time in the pool and failed to convince mother she should have a spa treatment.


Mom was not given her Rolex by Dad. He gave her $75.00 of Good Will gift certificates. Amy gave her Rolaids, Dad is shopping for a Rolodex, claiming that he is hard of hearing and Mom had a good time.


Check out the old hotel sometime. They flew an airplane off the roof in 1912, a queen or two stayed and breakfast is included.