This has become the Trail of Tears, the Butan Death March, 40 years in the Desert.... Pick one, add one, it does not matter. I have decided we are out of here on the Ides of March.
Yesterday I arranged from someone to be here with Mary-Elizabeth while I took advantage of the lovely gift from Nancy Ticen. She found Spa Scotia near by and sent me a note letting me know a gift certificate was waiting.
I went yesterday. OMG. Who knew that if your feet are massaged in a dark and quiet room with soft music and then they take a cheese grater to your feet that it can give your a new look on life? It helped so much and I have cute toes again!!!!
Unfortunately I did yell at the lady who wished for me to fill out "paper work" and review their privacy policy. My bad energy sent another woman running from the "quiet room". Oh well, I apologized and am hoping I will be allowed to return.
Things are "good". Not great. MEB is fighting the BK virus and the bladder spasms are awful but only two yesterday. She pretty much is still here because of the virus. It just takes time. At least we know what she has. So much of this process revolves around no knowing. It is a process of elimination. Each test or scan or evaluation is done more often than not to "ELIMINATE" a possible cause. They are doing an LP on a child today to eliminate ________ . Not to answer a question but to see what it is not.
All of it is mind boggling.
Floor is over full. They are literally waiting for children's chemo to end so a child in the ER can be brought to the floor. 43 kids NEED to be here right now.
Still no real food being served to Mary-Elizabeth. The head of dietary still thinks it is okay to serve Iceberg lettuce in 2012.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
Blog Archive
-
▼
2012
(280)
-
▼
March
(22)
- so..... now what or how the BK virus has become ou...
- Day 39....... Cancer Count Schizophrenic
- Good Enough.....
- I really am a bundle of exhausted Nerves but a Ped...
- Count Downs
- Even Starbucks can disapoint....
- Day 49 of 365 and Roller Coaster Rides
- Contridictions
- Best Laid Plans
- I want this flower in my yard. I must move my hous...
- Now What?
- WE ARE HOME.
- Transitions are Tough
- Life has continued and So will we...
- I have assessed the situation.
- Tell Everyone .....
- GVHD Primer. Some good, too much Bad. It appears...
- So..... Now What
- Neutriphils and their cousins.
- Remember..... We are always ELIMINATING a problem
- Creation, Step by Step or in this case stitch by s...
- Wierd things happen when you are not paying attent...
-
▼
March
(22)
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment