So Pam S. a parent from Seattle Children's thought I was talking about another Rebbecca being treated at Seattle Children's. Seattle's Rebbecca is 18, had a transplant and then disappeared from the floor to the ICU. Kids disappear.
It is another example of a subtle problem we have while in Cancer World. The hospital won't admit there are ANY children at the hospital because that would violate HIPPA. We live on the floor and many at Ronald McDonald House, chat in the clinic, Facebook each other and have a myriad of ways we ferret out information about what is going on with "our kids".
I can remember coming out of Mary-E's room one night and there were a million people in the room next door. Doctors and Nurses and portable machines. There was huge amounts of frantic activity. The next time I was out of the room no one was around. The room was empty and it looked like a war zone. No nurses were around and it was just creepy.
Kids just disappear and no one wants to talk about it. How sad is that. Some one's child is critically ill or has died and we pretend nothing has happened. Trying to "protect" cancer parents from what they know is a possibility from the moment we ask about outcomes may need to be reconsidered.
The silence scares us more and it removes a very important support system from the family.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
Blog Archive
-
▼
2013
(197)
-
▼
January
(32)
- I am in control of the Universe and it does fall a...
- Yellow River
- I am being reminded....
- She was mad at me today...
- InFLUenza....
- Both ends of the Spectrum
- Basic Expectations
- Deep Dark Woods and Desolate Ice Flows
- Notes from the Ice Flow
- How To Properly Return Home.
- There has to be a better way....
- Year of the Water Snake and Drinking Death Wish Co...
- Voices from other Places...
- Tucker may have to Die today..... and so should so...
- I Sat By a Guy named Brad
- A call for Kindergarten came and I went....
- Frost filled Mornings
- Rebecca
- Five Years is not Enough
- Rebecca is going to have to do as Dr. Tracy used ...
- My Rebbecca is on the East Coast
- Don't Get Me Wrong, there are good Stories.
- She is Awake, She hurts, but only when she Move.
- Happy Birthday Mary-Elizabeth PearlAnneEllieMae Si...
- Central Line University
- Hoping.... Something we have to do as Cancer Moms
- Hockey Night in Mountlake Terrace
- Generalized Anxiety and her name is Juliette...
- Rebecca started on a New Journey this evening.
- You Do Too Much....
- She is planning to go Back to Gonzaga......
- Process....vs. Event.
-
▼
January
(32)
No comments:
Post a Comment