She was sure I would fail to bring back McDonald's apple pie. She was upset and hungry and wanted bad food and she wanted it NOW...... She wanted sleep and she wanted it NOW.... She wanted a bath but was too tired to have that but she wanted it NOW.
She is about 3 right now. It is a good sign. That is the age they really start to fight for themselves. It was just one of those days. Full of little setbacks and no real end in sight.
Step forward: There is a plan in place for putting in a new port.
Step back: I left to pick up lunch and during my absence they needed to take out the much fought for IV. She is afraid she will have to have another one. I have assured her they are not going to do that without me there and after a lot of discussion about alternatives.
Step forward: Her cough is becoming productive.
Step back: She coughs so much she can not sleep.
Step forward: We finally had a discussion about making sure she gets some sleep.
Step Back: Shift Change and we have to do it all again.
It is the little things. I left to take care of the dogs and because I don't think I am helping. I am going to go back after some dinner and drop off some sugar free cough drops and some food. She is not really hungry but will be later and we know there is no food for her at the hospital beyond the satsumas and jello.
Sleep will help her more than anything. Today was the first day she mentioned wanting to go home. I am hoping we can make that happen in a day or two.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
Blog Archive
-
▼
2013
(197)
-
▼
January
(32)
- I am in control of the Universe and it does fall a...
- Yellow River
- I am being reminded....
- She was mad at me today...
- InFLUenza....
- Both ends of the Spectrum
- Basic Expectations
- Deep Dark Woods and Desolate Ice Flows
- Notes from the Ice Flow
- How To Properly Return Home.
- There has to be a better way....
- Year of the Water Snake and Drinking Death Wish Co...
- Voices from other Places...
- Tucker may have to Die today..... and so should so...
- I Sat By a Guy named Brad
- A call for Kindergarten came and I went....
- Frost filled Mornings
- Rebecca
- Five Years is not Enough
- Rebecca is going to have to do as Dr. Tracy used ...
- My Rebbecca is on the East Coast
- Don't Get Me Wrong, there are good Stories.
- She is Awake, She hurts, but only when she Move.
- Happy Birthday Mary-Elizabeth PearlAnneEllieMae Si...
- Central Line University
- Hoping.... Something we have to do as Cancer Moms
- Hockey Night in Mountlake Terrace
- Generalized Anxiety and her name is Juliette...
- Rebecca started on a New Journey this evening.
- You Do Too Much....
- She is planning to go Back to Gonzaga......
- Process....vs. Event.
-
▼
January
(32)
No comments:
Post a Comment