Children's asked for a contribution. This is what I wrote last fall.

A Bit Removed from Treatment



Mary-Elizabeth’s story has been said, told and retold. We went to the eye doctor where he found swollen optic nerves. After many other appointments to detect the cause over two months we arrived fully into the "Cancer World" and all of its glory: side-affects, puking, fights with the insurance company and bottles of pills equal to mortgage payments. I want to talk about time away from the "Cancer World". It is a place that many people forget exists. Life after cancer is as jolting as life in cancer treatment. Cancer is like air, it is always there. Every sneeze, bump, bloody nose, strange look, craving, headache, bump, rash or anything else you can think about is the dreaded "RELAPSE". Every news story about a famous person that now is fighting the good fight again is gut wrenching. Time does make it better with each day being a little bit better than the last. Mary-Elizabeth went to bed by 7:30 every night during treatment. It took about six months or more of being off of treatment but she started to stay up later and later. She is now 15 months off treatment and is staying up until 11:00 p.m. doing homework. When she first ended treatment she was barely able to walk the dogs down the block and had to use the elevator at school. Now she takes all the stairs at Holy Names and does crew five nights a week. This fall she will row in three regattas! I realize that we have very gradually arrived back to "normal". It is more of a life similar to pre-cancer where it feels safer and healthier. It is a place where I can now plan to cook Thanksgiving Dinner this holiday and know it will happen. I also realize that I had unrealistic expectations about how long it would be before we arrived in this new place. In our experience for every two months of treatment, it took a month to really recover. She was in treatment for 30 months and we are 15 months away from it. Time in the "Cancer World" makes you appreciate so much about life, health and most of all “normal".
What does Children's mean to you, your child and your family?
Returning a phone call and hearing: “Hem/Onc Garcia here” is never good. It is not what any parent wants to hear, but having returned the phone call to Children’s was the best part of the call. I truly believed my daughter would survive treatment and would go on to live a good life after. I don’t know if I would have survived the process anywhere else but Seattle Children’s. To me Children’s is sort of medical department store with its labs, psychiatry, ophthalmology, dentistry, radiology and physical therapy all on site. There was no need to do more than take an elevator or find a new hall way to get between appointments. We only had to leave the main campus once for an appointment and that was for 12 doses of spinal cranial radiation. The Schedulers took care of making all of scheduling all of Mary-Elizabeth’s appointments and if there was a problem, they would solve it. The staff always took care of transferring records and x-rays between clinics and appointments so I never had to. Children’s is runs so well and they are so careful to make sure the patients come first. We had the luxury of having the same doctors and nurses throughout her entire treatment. They welcomed us with understanding, compassion and hints on where to find good coffee. Each cancer patient has a nurse practitioner and ours was Karyn Brundige. She was never rushed, always listened and worked with us on making cancer treatment palatable. Never can I say enough about the people, the care and the support we felt while there. Mary-Elizabeth is off treatment and she now seeks treatment for ordinary things from her primary care doctor. She loves him but we always look for an excuse to return to Children's instead.