So if you live in Seattle you have to be a weather optimist. You have to not listen to the weather and you certainly never ever believe that it is going to rain. Now that does not mean that you don't know it rains or own both a good rain coat and a seldom used umbrella. You don't focus on the amount of rain or the frequency but rather you notice, with great alacrity the moments, and sometimes seconds of blue sky, shafts of sun and glimmers of sunsets. If you do that Seattle is a very lovely often sunny place with a few rain breaks. One never hears someone from Hawaii complain about the rain, no they have decided it is sunny there with a bit of rain. That attitude is how I have loved and lived in Seattle for 25 years.
So Lukemia is like that. It is a horrible dark, scary, painful, dreadful place. It is full of procedures and side effects and side effects from the meds given for the side effects. It is a complicated place where there is no exit once you enter.
Cancer World sucks so so much. It makes everything hard and frustrating and it makes even the nicest person blow up at the admitting girl because it makes no sense that after checking in on one floor we have to do it again and have a new band and sit around with a bunch of germy people and wait for hours and hours while your child's blood sugar drops. It is horrible waiting for an hour for the doctor to come tell you how the procedure has gone because you have had so many times that the wait means complications and not good news. Just say Day Surgery is not the Hem/Onc clinic. Hem/Onc Fabriche egg, Day Surgery plastic Walmart egg.
So in all my complaining, there are moments, good moments. When the Hem/Onc peep(Terry from England and your ANP Karyn Brundige) deliver your chemo to Day Surgery so you don't have to fret any longer about getting Chemo on another day or being off schedule. (Who knew you would want to have your child chemo?)
So yesterday, a day that started at 7:20 am and ended at 4:15 pm, had moments of blue sky and sunshine.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
Blog Archive
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2011
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November
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- So No Remission for Us.....
- Back Again..... But Progress has been recognized.
- 10 Hours in.... More to go
- The R Words
- Chef Walter Speaks and I reply.
- Almost Home
- Home After 6 Days.
- So, Treasures are Falling From the Sky
- Lookemia is sort of Like Living in Seattle and bei...
- This is me trying to get the Chef's Attention
- 11/11/11
- Chef Walter and I are going to be friends.
- Things I Never Wanted to Know aboutj Platelets.
- Time Certainly Passes when you are not having fun.
- Crane Folding and X-File Watching
- So...... We enter Cord Blood World
- More Cord Blood Information.
- Turkey Day 2010 and 2011
- Gravy Boat Envy
- Thoughts on Transplants
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November
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1 comment:
I love that you keep writing. hopefully it keeps you sane. and love the picture of M-E.
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