Mary-Elizabeth loves to be organized. She has been working on the world's cutest notebook to keep track of her life and her transplant.
She has a book, and lists, and dividers and stuff and places to put cards. I love that she has taken over this part of her treatment. Her meds, her dressing changes, her appointments.
She is enough like me that when she is not deep in that place she will soon travel, then I will step back in and be the keeper of the note book.
Together we will track the journey on paper, in a notebook, between the tabs with the perfect pens.
Now to find the ornament boxes to take down the tree. We will need other things to make the nights seem less dark.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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2012
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January
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- All I want in 2012 is to make it to 2013.
- Day 14 a Count Down to Day 8
- Day 13,
- Day 12......Hopefully Transplant Approval.
- NO NEW CAR.... THE TWO UNITS OF CORD BLOOD
- Day 11
- Day 10
- DAY 9....Paper
- Day 8 and counting.
- Poet Samuel Green, says it better then I can.
- Day 7,
- Day 6, Radiation
- DAY 5 Worry, Wondering Working and Waiting.
- Date Books and Day 4, Looks like a go.
- Count down
- Friday the 13th......
- 48 Hours....
- So......
- My Novena............
- We Begin...... Day 8 count down to Transplant.
- Day -7.... Or how I Iost the bet about the Oreo M...
- So when they give you fluids, they want them back....
- Day -5 Really.... Now her bone marrow wants to...
- Day -4 of Bone Marrow Slaughter and Dose -8 and -...
- Day -3 Two more doses of Radiation down. 5 to go
- Day -2..... Little Steps
- Day -1 or So How does this work?????
- Day 0
- Day 1 or the Girls are Settling in.
- Day+2 Or Really..... You don't Wash the Lettuce!
- Day 3, no signs yet. of the girls..... but then w...
- so...... Day 4...
- Day +5 and +6 working for solutions
- Day +7 and the search for answers and the right to...
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January
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1 comment:
Bone marrow transplants are nothing short of a miracle. Don't pay too much attention to the statistics that you are quoted. Mary Elizabeth is a unique individual, not a statistic. Hang in there, you will get what you want.
Roger had a transplant in November 2010, fell off the path to a cure, got back on the path and is doing well again. It's not easy, but it is possible.
Godspeed to you both.
http://bonemarrowboogie.blogspot.com/
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