We are in our new room, huge window, big space and my spare annex where I can write and escape from the world. We are so, so, did I mention so so happy.
I have not seen the counts but my child is tired, but thankfully willing to eat and drink to day. Good night in the big room, but like any hotel, it takes a night to settle in. We have been in really tight quarters and this room is huge. If this was a cruise, we would be on the top floor. Mary-Elizabeth felt like I was too far away last night but we have decided she will be happier if I have my head at the other end of the bed.
Radiation began to day. 7 am and 5 pm. We were up at 6:00 for Bob and Rob (I don't make this stuff up) We were then transported by the ambulance to the University of Washington Medical Center. The roads were passable but not the best. The hospital did not seem to have plowed the entrance to the Emergency Room. It did not deter us but could have any other vehicle. Seemed odd but then who am I to understand these things.
We found our way to the locked and closed Radiation oncology department. Found a willing soul and worked our way in. We were met by a very very awake nurse and the process began. She had to change into their cloths, go to the room, stand between two specially constructed panels and stand for 45 minutes. The panels are of various thicknesses so they can make sure each part of her body receives the same amount of radiation. She did fine but was very tired after the process. She was loaded back up, stuffed back in the ambulance and we returned.
She asked for Kettle Corn, (Thanks Snack Guy Andy) watched some I Luv Lucy and is now sleeping
4:15 pm Repeat.
On the way over Bob or Rob, received a page letting him know that the U was full up on Psych Patients. They took me anyway....
. .
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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January
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- All I want in 2012 is to make it to 2013.
- Day 14 a Count Down to Day 8
- Day 13,
- Day 12......Hopefully Transplant Approval.
- NO NEW CAR.... THE TWO UNITS OF CORD BLOOD
- Day 11
- Day 10
- DAY 9....Paper
- Day 8 and counting.
- Poet Samuel Green, says it better then I can.
- Day 7,
- Day 6, Radiation
- DAY 5 Worry, Wondering Working and Waiting.
- Date Books and Day 4, Looks like a go.
- Count down
- Friday the 13th......
- 48 Hours....
- So......
- My Novena............
- We Begin...... Day 8 count down to Transplant.
- Day -7.... Or how I Iost the bet about the Oreo M...
- So when they give you fluids, they want them back....
- Day -5 Really.... Now her bone marrow wants to...
- Day -4 of Bone Marrow Slaughter and Dose -8 and -...
- Day -3 Two more doses of Radiation down. 5 to go
- Day -2..... Little Steps
- Day -1 or So How does this work?????
- Day 0
- Day 1 or the Girls are Settling in.
- Day+2 Or Really..... You don't Wash the Lettuce!
- Day 3, no signs yet. of the girls..... but then w...
- so...... Day 4...
- Day +5 and +6 working for solutions
- Day +7 and the search for answers and the right to...
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1 comment:
You're both doing great. Keep going!
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