Quick trip to SCCA we met with Angelica our SCCA social worker. She can be rattled. While Fred was calm and collected when shown the large kitchen knife and the roman candle she was visibly concerned.
Mary-E had and IT/LP (chemo in the spinal fluid) in IR (interventional radiology). Anessia was behind so they tried to make her do it without. She stood up for herself. There was no way she was going to have it without being under. Since, as she pointed out, they have missed even though they have huge floroscopes and a 150,000 viewing screen. (I wonder if they have to eat the hospital food.)
Meb has 5 more of these before she is done. One more before transplant. I will figure out who needs to have a small reminder that she is still a kid, one that has had significant trama around LPs and will never ever, ever, never have someone try and make her do it without being a sleep.
So today, today is simple, early morning blood draw. Meet and Greet with Anne Wolfrey (middle name Elizabeth). She will explain what they have found in the worlds most extensive physical and hopefully will sign off on the transplant. Then we order the $ 40,000.00 cord blood units.
Someone goes and gets them and brings them to the Hutch. Then they keep them until the 24th when they thaw the them, sort of like Rhodes bread.
Deep breath Sally. I love this, we hate the idea of what has to happen to make the transplant successful, (chemo, radiation) and the side affects, (no counts, infection, sores in places we don't even want to think about) but no we are at the place we are begging to be okay to go through transplant.... Go figure.
After the meeting and the spending of the amount of money it would take to buy a new car to pay for two units of cord blood, we go have our toes done. Seems like the thing to do.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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2012
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January
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- All I want in 2012 is to make it to 2013.
- Day 14 a Count Down to Day 8
- Day 13,
- Day 12......Hopefully Transplant Approval.
- NO NEW CAR.... THE TWO UNITS OF CORD BLOOD
- Day 11
- Day 10
- DAY 9....Paper
- Day 8 and counting.
- Poet Samuel Green, says it better then I can.
- Day 7,
- Day 6, Radiation
- DAY 5 Worry, Wondering Working and Waiting.
- Date Books and Day 4, Looks like a go.
- Count down
- Friday the 13th......
- 48 Hours....
- So......
- My Novena............
- We Begin...... Day 8 count down to Transplant.
- Day -7.... Or how I Iost the bet about the Oreo M...
- So when they give you fluids, they want them back....
- Day -5 Really.... Now her bone marrow wants to...
- Day -4 of Bone Marrow Slaughter and Dose -8 and -...
- Day -3 Two more doses of Radiation down. 5 to go
- Day -2..... Little Steps
- Day -1 or So How does this work?????
- Day 0
- Day 1 or the Girls are Settling in.
- Day+2 Or Really..... You don't Wash the Lettuce!
- Day 3, no signs yet. of the girls..... but then w...
- so...... Day 4...
- Day +5 and +6 working for solutions
- Day +7 and the search for answers and the right to...
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January
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1 comment:
new car? what kind?
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