Deep Calming Breaths and Drugs get us through the Day.

Today ( Tuesday)was the last LP, it took almost 45 minutes because of the scarring and issues with her spine and the thecal sac and no matter how wonderful the 150,000 television screen can be, it is hard to find the spot when it has been attached so many time.  But she is done with this type of procedure.   Thank God. 

I don't know if I could take another one.  Last time was had finally stumbled crawled, fumbled around to find the right group of drugs, infusions time and Ritz Crackers to make this process something we had to try and manage for several days. 

One of the required elements was the Caffeine infusion. Some one somewhere puts caffeine in fluids and ships it to those who make a request.  In the land of Starbucks, and 1.2 million people hyped on coffee, one would think that such an item would be easy to come by.  How wrong you would be.  Two weeks ago, Mary-Elizabeth Sierra Lanham was treated to the very last infusion at Children's Hospital.  There is a shortage. 

A shortage of caffeinated fluids in Seattle.  Did I mention that there were no caffeinated IV fluids available.  Really.  How could that even be possible.  First the patches for nausea, then Methaltrexate and now this item.  Oh, yes and the time we were working with itty bitty alcohol swabs. It makes me worried on a number of levels.

She mumbled and stumbled through without the infusion.  Tablets and a bolus of fluids was administered and some extra pain meds and she seems to be fine.  It will take time to tell but then that might be why after day 100 they tack on 265 more days, just to make sure.

I finished the first needlepoint.