June 21, 2004 to June 21 2005

2004 we went to Dr. May, Neuro Opthomologist. Never knew they existed. He confirmed, for the third and last time the optic nerve issue and added some vision loss. He scheduled us for a MRI and then said it was okay to send her to camp. As I sat in the waiting room and listened to the receptionist explain that it would take a month to see the Doctor, I knew we were not on a normal path. We were waiting for an 11:00 appointment on a Monday after having it made on Friday. Oh, well, I knew that we were not in good territory. Belle wanted to have a spinal tap to see what the pressure was. He did make me feel better in not wanting to rush her through that procedure.

2005: We are waiting, waiting for the bone marrow to start producing White Blood Cells. It is mad at us. It has learned that we don't like white blood cells so we are going to pretend to ignore it for awhile and trick it into making more so we can kill them again. M-E said it was like that game with gophers that pop up and you hit them on the head with a hammer. We have the hammer and we are watching and waiting. I told her we could develop a game for that purpose. The gophers could be all the different bad cells and the hammers could have names like vincristine, methotrexate Ara-C and things like that. Just an idea. Thankfully the market would be very small.