Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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2005
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July
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- The Count down to Maintenance is almost complete.
- Pictures
- The 13th Birthday is almost Here
- It Was A Great Party
- Great Friends
- Lots of 9-11's
- Last Day for Ara-C
- Patience
- Important Visits from Family
- News and ambiguity.
- What to Think, What to Think
- Honoring important people.
- I think I may have to read a book by EL Doctorow
- Good Friends and Good times
- WE are so close to the end of this last intense ph...
- Long Journeys
- Lots of people have been asking about M-E disease....
- SAND BOXES
- Problems with the Educational System
- We Stepped Back in Time and It was Refreshing
- Tomorrow is a big Day
- The Sun is up. I have had one cup of Coffee.
- Nope
- I found a picture of LOkemia cells.
- Limbo
- Shifting Sands
- The Bad Guy is really REally REALLY dead
- Day One, not Day Zero
- Day Two
- A welcomed time away.
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July
(30)
Wednesday, July 20, 2005
Long Journeys
M-E listening and reading book five of the Harry Potter books. Book 6 is hiding and ready to be read. If you have read and finished book 6 please let me know. My sister wants to discuss it with someone and is not happy with our progress.
Tracy Henz, our Hem/Onc fellow. She is now a second year and not tied to much to the hospital. She went with us to the movie ( Her first one she has had time to see in Seattle) and to capital hill and to Red Robin. I wonder if she has been up the Space Needle.
We went to see the March of the penguins last night. It is playing in a theater here. What an amazing movie. What an amazining creature. We learned a lot about penguins but now have more questions. I guess that is life. The gist of it is they live in the water for 4 years before going to the breeding grounds as full adults. They make a trip from the ocean to the grounds which is 70 miles from the ocean.
They pair off, mate, the female produces the egg, passes it to the dad. She returns to the ocean to feed and bring food back for the hatched baby. She arrives (hopefully before the baby dies of starvation) and then he leaves to feed and bring food back. They make the journey several times to the ocean. Then one day, before the babys swim, both parents return to the sea and leave the baby's to fend for themselves. It was amazing to watch and worth the trip to capital hill.
Our journey has been as long but not nearly as cute and fluffy. In many ways it has been as rewarding. At times it has seemed as endless as those starving mothers walking 70 miles or more after two months inland. It has also been in company of good supportive friends, family and kind strangers.
M-E will ultimately be the abandoned chick. We will make sure she can swim first. She will be surrounded with her friends and her sister but at some point we adults have to leave on our own journey but we have lots of long summers and cold winters before that happens.
I want a baby penguin for Christmas.
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