Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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2005
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July
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- The Count down to Maintenance is almost complete.
- Pictures
- The 13th Birthday is almost Here
- It Was A Great Party
- Great Friends
- Lots of 9-11's
- Last Day for Ara-C
- Patience
- Important Visits from Family
- News and ambiguity.
- What to Think, What to Think
- Honoring important people.
- I think I may have to read a book by EL Doctorow
- Good Friends and Good times
- WE are so close to the end of this last intense ph...
- Long Journeys
- Lots of people have been asking about M-E disease....
- SAND BOXES
- Problems with the Educational System
- We Stepped Back in Time and It was Refreshing
- Tomorrow is a big Day
- The Sun is up. I have had one cup of Coffee.
- Nope
- I found a picture of LOkemia cells.
- Limbo
- Shifting Sands
- The Bad Guy is really REally REALLY dead
- Day One, not Day Zero
- Day Two
- A welcomed time away.
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July
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Wednesday, July 13, 2005
News and ambiguity.
OH, a year ago we were in a sea of ambiguity. We were at the doctor and hospital and various scanning places. We took reports from one place to another all the time. Our lives were in chaos. We were not sure what was going on or how to prepare and act. I felt like we were playing one of those games where you pound down the praire dog. Each time a new bit of information appeared, you had to react and then wait for the next bit. It was hell.
Immediately friends and family were offering assistance and advice. It is all so overwhelming that it is hard to grasp. Those offers were very supportive and helped in ways that were not intended. I did not hear the words and was not able to organize my thoughts enough to know what I needed. What did come through all the fog was the knowledge that I was loved and supported and not alone. That was what was important and so greatly valued.
We just received the news that one of M-E's friends is going through the "finding out what is wrong" phase. She has some symptoms that don't make lots of sense and they need to "take more tests." Lots of prayers for the parents that have to live waiting for news while living with painful ambiguity.
Notice I am ignoring the day. 11 months ago..............
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