Well I used to replay the day of her birth through my head as the day progressed.
I will start by calling Lisa Alhadeff first thing in the morning. It will end with fireworks about 10:00 p.m. It used to be a day full of private reflection. I spend the day telling Mary-Elizabeth it is not her birthday YET. She gets mad because she is soon in bed after that moment.
Now my mind is replaying the last years events. The medical reports, the good news, the bad news, as we approach the day she was diagnosed, I keep second guessing myself on how we missed the clues, how we did not see the obvious. I have a picture of her from horse camp. She looked sick. Now I can see it. I did not want to see it then.
I received a bunch of bad news last year on her birthday from Thomas Kim. He is our friend that was at the U, a neuro radiologist. He tried to be positive, but he was very very upset and avoided me during the entire party. I knew that was bad.
Oh well. That was last year. We have come a long way.
Now we know what we are dealing with. I am hoping I can get back to that happy place.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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- The Count down to Maintenance is almost complete.
- Pictures
- The 13th Birthday is almost Here
- It Was A Great Party
- Great Friends
- Lots of 9-11's
- Last Day for Ara-C
- Patience
- Important Visits from Family
- News and ambiguity.
- What to Think, What to Think
- Honoring important people.
- I think I may have to read a book by EL Doctorow
- Good Friends and Good times
- WE are so close to the end of this last intense ph...
- Long Journeys
- Lots of people have been asking about M-E disease....
- SAND BOXES
- Problems with the Educational System
- We Stepped Back in Time and It was Refreshing
- Tomorrow is a big Day
- The Sun is up. I have had one cup of Coffee.
- Nope
- I found a picture of LOkemia cells.
- Limbo
- Shifting Sands
- The Bad Guy is really REally REALLY dead
- Day One, not Day Zero
- Day Two
- A welcomed time away.
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