Yesterday someone shared a notice of a newly diagnosed family. First grader, at Children's, Family well Supported. What to do.... Child had a long chronic cold, will be a Seattle Children's for a while. The family has a meal service set up, they are adjusting.....
Oh, my it brings it all back all so so fast.
For a few moments the original diagnosis passes by. Confusion, upset, concern, panic, fear, despair, and then more confusion. How did I handle it? What was I needing in those early months? How did we survive? What would have made it better?
I know it took me a long time to figure out how to receive from other's without guilt. It took a long time to put into words what I needed other's to do. Everyone wants to help. Everyone wants to something. No one wants to do something wrong. Do we call? Do we visit? If we visit do we stay an hour? Do we take food? Should we send balloon, cookies, flowers, a new puppy?
The fact is they have just had some of the worst news of their life, are in total shock and are just trying to get from one set of rounds to another. They are learning about counts, are ecstatic that their child is not throwing up and that the hair is still their. They are grasping on to any little bit of hope available. They are telling their friends "it is the good kind of childhood cancer".
I can remember when we would go for a walk on the floor or go to clinic and Mary-Elizabeth would say, "They are new". I would agree and we would continue. We each would enter that corner of our brains that those first memories reside.
9-11 is seared into the memory of many. Some of us still remember when John Kennedy died. Some when John Lennon was shot. Some when they got a call from a friend staying at their house, asking that a call be returned to Children's.
We all have these dates and times. Some universal, some personal.
Hoping for memories of good things.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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