Well we were not successful in staying out of the hospital. She was just throwing up all day. The closer we were to bed time the more she was getting sick and the color was getting very green. We headed to the hospital in sleet and on icy streets. As soon as we arrived, I began to become the evil mother. It must be confusing to the hospital personal. We arrive asking for help for our child and then begin to push for instant release. We have enough experience to know that if we stay too long we have to stay overnight and that it not a good experience for anyone at any time.
So thus began the "Get us out of here!!!!" Rant and rave. We now have it down. First fluids, fast fast fluids, then the negotiation for more than 4 units of Zofran IV. Like I went through all of this for 4 units. Then the always necessary explanation to the new baby resident that her liver function tests are not something that requires an immediate transplant, rather we are in great shape when the tests are viewed from the Hem/Onc world. Oh, well, I don't want every pediatrician to have a detailed working knowledge of lukemia in any of it's forms. No one should have to go through this process let alone more than the 3000 kids who are diagnosed each year.
We did make it home. M-E was mad at me for pushing so hard. I knew she would sleep so much better in her own bed. Home is such a haven. Thank God we get to return to our little bit of Ballard every night. The most we have to negotiate would be the cat's demands.
We are hoping for a better week. We are hoping for no more Methotrexate. We are hoping for school. We are always hoping for a miracle.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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2005
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January
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- 2005
- Tomorrow we are going to try and go back to Pre-AL...
- She made it back to school
- Expected Waves
- We keep learning things about how this is affectin...
- Caught off Guard
- Father's News of December 29, 2004
- Houston we have a problem
- I think she has finally hit the angry stage.
- 5th Month
- This made me smile and remember what a great thing...
- The Flickers are back
- Yuck, a trip to the hospital
- Tomorrow is an important day.
- Introducing my friend "What Now"
- He wanted a Cigar
- A Moment of Relief
- Waves
- Some Waves are not all Bad
- M-E is great Dad is great day 4 of 10 Day Trial.
- Coal Mine's Daughter
- A short Breather
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January
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