She is done. She wants to just go home. So for about 12 minutes we thought about packing up and heading back to Gonzaga. I am getting a job over there where I can boss people around and she will return to school asking for some extra time for her projects.
Then she took a shower and ate two pieces of Raisin Toast and visited with the Frol Cousins and all the assorted Medical People and they were appropriately abused. The Sierra's showed up with healing food Burger Master. What could be better?
I had a very concerning call from the Bone Marrow folks. We are on a fast track to transplant. In Cancer world we are months away. 6 weeks for her HLA typing, then match searching, then lots and lots of rounds of Chemo, Radiation, and then when she has no bone marrow at all, we give her someone else's bone marrow and wait 100 days. THEN we have a year for it to grow up. Oh, all of this for only $350,000 or so.
Two years of medical treatment or a new house.... hard to choose.
Going for Midnight bacon....... at 1:00 am.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
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2011
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October
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- Mixed Messages
- Boy......What a difference a day and a night makes...
- Bone Marrow Registry
- Buisness Day Three of Cancer and Mary-Elizabeth is...
- The Numbers and Dates and Time
- The 12 Disciples and the Road to Transplant
- The answer to every thing I ask needs to be YES an...
- We are back in the Hospital
- BLUE THUNDER JAIL
- New Words...... and the Recipe for Cinnamon Toast
- Things we learned on this Admission
- Still Zero and I woke up with a cold.
- Grandma Mary and I have been kicked off the Island.
- Kitchen Lights at 5:00 am and other observations o...
- Crisis of Faith
- Its the Little Things that make the difference
- Seattle Bone Marrow Drive
- Heavy Sigh
- Packaging and Managed Expectations
- Hospital Food
- So the house needed some attention.
- Heartburn is not for sissys
- More than Leaves are Falling.
- 18, we have 18 182 to go.
- 63 and Counting
- Foiled Again
- We Are Calling Security......
- Competitive Lukemia Relapse Protocol
- 5 am and other wierd and random thoughts.
- Dancing Doctors and bribes bring results.
- Searching of "FOOD" at Seattle Children's Hospital
- Did you know today was the 28th? and we have been ...
- In Boston they did a Hospital Chef Cook-Off. I wo...
- There are no Answers Only Arguments
- Big Battles and little victories
- So Now What
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October
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1 comment:
OK we are wishing for remission, then marrow match, then healthy regrowth and underneath all of this, the strength and energy to stay connected with friends and the prospect of a real life someday. Got it. Meanwhile, remember to take care of yourself so you can be there for her. Good care of yourself. You're not all she's got, but you're the best thing going for her. I am so sorry you have to go through this again. So sad for you both. Big hug.
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