So it is all about packaging. Nothing is simple. MEB had to have a patch to deliver some medication. It took three days to arrive because it was not in their pharmacy. It arrived to day and is the size of the tip of her finger. It arrived in a package the size of a thank-you card envelope. You know the size.
Everything in Cancer World comes packaged. Even the packages are packaged. A bag of IV fluids are sealed and then they are in a sealed package. Anything that comes into the room has to stay in the room lest the package is contaminated and then can not be repackaged. Lots of landfill is created. No waste management here.
The news comes packaged as well. There is the big package:
Your child has relapsed.
Buried inside of that package is the : Your child must go into remission and these things make this happen.
If you child does not go into remission, then you must open this package and it has other things inside.
If you make it transplant here is your very special special box of goodies. Best not look there until it is time because you really don't want to look now it might make you close package number one.
Hair Loss is in all the packages.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
Blog Archive
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2011
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October
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- Mixed Messages
- Boy......What a difference a day and a night makes...
- Bone Marrow Registry
- Buisness Day Three of Cancer and Mary-Elizabeth is...
- The Numbers and Dates and Time
- The 12 Disciples and the Road to Transplant
- The answer to every thing I ask needs to be YES an...
- We are back in the Hospital
- BLUE THUNDER JAIL
- New Words...... and the Recipe for Cinnamon Toast
- Things we learned on this Admission
- Still Zero and I woke up with a cold.
- Grandma Mary and I have been kicked off the Island.
- Kitchen Lights at 5:00 am and other observations o...
- Crisis of Faith
- Its the Little Things that make the difference
- Seattle Bone Marrow Drive
- Heavy Sigh
- Packaging and Managed Expectations
- Hospital Food
- So the house needed some attention.
- Heartburn is not for sissys
- More than Leaves are Falling.
- 18, we have 18 182 to go.
- 63 and Counting
- Foiled Again
- We Are Calling Security......
- Competitive Lukemia Relapse Protocol
- 5 am and other wierd and random thoughts.
- Dancing Doctors and bribes bring results.
- Searching of "FOOD" at Seattle Children's Hospital
- Did you know today was the 28th? and we have been ...
- In Boston they did a Hospital Chef Cook-Off. I wo...
- There are no Answers Only Arguments
- Big Battles and little victories
- So Now What
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October
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