Dates.
Date of first Diagnosis: August 13, 2004, Friday
Date of First Remission September 13, 2004
Date of Relapse: September 29, 2011.
Date of Second Remission: Still waiting.
Numbers:
White Blood Cells upon first Diagnosis: 26,000
White Blood Cells on Relapse: 225,000
White Blood Cells on October 6, 2011 .02
Time:
Length of first Treatment 2.5 year
Length of second Treatment, 2 years.
Seems like it should be easier but NOOOOOOOOO. It is so so so different. Since last week she has had at least 8-10 transfusions, 2 spinal taps, a bone marrow, Hickman Placement, 9 rounds of chemo and now we wait.
Some minor chemo during the month but really now we wait for Blue Thunder to do it's thing. I have to figure out what it really is because it is on a search and destroy mission in her body.
If she is in remission then we head to transplant. A very long hard road of killing her bone marrow, keeping her healthy, keeping her in remission. I guess bone marrow is sort of like a very cranky old cat that refuses to die. It keeps coming back for more and more and more. Even after transplant there are random cells that float around and cause trouble.
Enough of this. Today I am working on WHAT TIME ARE WE GOING HOME!!! We would do better in our own beds.
Twenty Years, Two Hundred and Forty Months, Seven Thousand Days, and Three Hundred Days. Since we started chasing Leukemia.
Blog Archive
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2011
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October
(36)
- Mixed Messages
- Boy......What a difference a day and a night makes...
- Bone Marrow Registry
- Buisness Day Three of Cancer and Mary-Elizabeth is...
- The Numbers and Dates and Time
- The 12 Disciples and the Road to Transplant
- The answer to every thing I ask needs to be YES an...
- We are back in the Hospital
- BLUE THUNDER JAIL
- New Words...... and the Recipe for Cinnamon Toast
- Things we learned on this Admission
- Still Zero and I woke up with a cold.
- Grandma Mary and I have been kicked off the Island.
- Kitchen Lights at 5:00 am and other observations o...
- Crisis of Faith
- Its the Little Things that make the difference
- Seattle Bone Marrow Drive
- Heavy Sigh
- Packaging and Managed Expectations
- Hospital Food
- So the house needed some attention.
- Heartburn is not for sissys
- More than Leaves are Falling.
- 18, we have 18 182 to go.
- 63 and Counting
- Foiled Again
- We Are Calling Security......
- Competitive Lukemia Relapse Protocol
- 5 am and other wierd and random thoughts.
- Dancing Doctors and bribes bring results.
- Searching of "FOOD" at Seattle Children's Hospital
- Did you know today was the 28th? and we have been ...
- In Boston they did a Hospital Chef Cook-Off. I wo...
- There are no Answers Only Arguments
- Big Battles and little victories
- So Now What
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October
(36)
1 comment:
Words can't express the emotions I felt when I heard about Mary Elizabeth's new battle. Your new fight is 100 billion times harder than what we are dealing with. Thank you for your time and energy you gave our family. We will miss you, but if we can stop in and give you a hug and bring you a double tall latte, please let us know! We will keep you both in our prayers.
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