Monday, February 29, 2016

Sometimes it is too hard to stay connected.

Sometimes it is just too hard to connect to Facebook or other parts of the Web. 

I would love to open the site and not see how many angels have been born. 

I would love to open to not see how many kids have been admitted for unexpected reasons. 

I would love to not learn some new and "special" side effect.  

I would love to be able to reach out and help a mother who stumbled  across an old Valentine.  Such a small item can mean a day of heartache. 

I would love to not read that a child is about to find a new set of wings.  I would love to have words or pictures or signs I could send to the mother and family. Something that would make a difference. 

It is not an option for me.  I am either connected and life is hard and discouraging and terribly sad or I am blind to the hardship and suffering.  I walk away sometimes for a little bit but then we all need some shelter out of the meteor shower.   



Then I seem to be pulled back.  While I have the luxury of not being in the heat of battle, the battle and struggles are not far away.   It is like a haunting.  You catch glimpses out of the corner of your eye.  Just a momentary visit by a demon. Something that reminds you to be wary. 

I guess I will plunge back into Cancer World. 
Even though Seattle Children's does not like me.  Here is the most recent love note. 


I need to review with you both visiting standards and visiting protocols.  I understand you’ve done some remarkable work supporting both families and patients.  That said we need to insure that there are never any occasions where families or patients are visited without the needed approvals.  Simply said there can be no cold calling or spontaneous surprise visits to hospital families and patients.  I’d like the chance to review this with you and look forward to that opportunity



Just love these people sometimes.