Day 28.... but not really

Bone Marrow today, so we are pretending it is day 28, again.  Long week-ends and the fact she is not the only child in the hospital makes scheduling difficult.  Go figure.

She is working on whining herself off IV pain medications.  She is sleeping a lot but is getting up more and more.  She has counts high enough to go to Starbucks so we are working towards that end. 

This is a long long road.  It will take her awhile to regain her strength and her confidence and her sense of humor.  She works really hard at being upbeat but it is not every moment of every day. She is feeling very Orange.  (Raj on Big Bang decided orange was a lonely color because nothing rhymed with it.)

I have not switched "to getting out of here mode"  I know that once we leave after this admission we will be back here.  Bone Marrow kids have purple tags.  There are about 18 purple tags on the floor right now.  Kids come back for fevers and to address GVHD issues that come up.

I do better when I know what "could" happen. Let me ponder how to deal with the worst and let me rejoice in the fact those things don't happen. 

So today is day 28....