Day +15 A bit of pink before the Dawn

Remember the list of stuff that they give Mary-Elizabeth?  Well last night they had timing issues with her Platelets.  They can not do blood products with other drugs through the same line so one had to be free long enough for the Platelets.  Then her platelets have to be washed a special way (lest she get hives which leads to other nasty things) and that takes a long time.  And to make things even more fun, Platelets have a very short shelf life outside of the body.  The timing did not work and a bag of specially washed little cells became medical waste. 

Long and short of it.....  Platelets were hung about 5: am...  I can't imagine how all this works if there are problems that require more drugs. She is doing really well as can be expected.  Nothing really weird or scary.  Just normal weirdness.

She is sort of red all over and no one knows which Syndrome is causing that to happen.  They treat both with steroids but they don't want to use them too soon because they discourage the "Girls" from setting up their home. So the red skin stays, is watched and we wait until there is something more certain.

As I was waking up this morning, I looked out the window and could see tinges of pink, hard to see, impossible to photograph, some clouds announcing the coming of the new day.  I thought it was appropriate to see such a sky this morning.  We are getting close to dawn.  It is going to be a very very long day but I am so grateful that we are going to get to live this day, and to the fullest.