Ms. PacMan

Ellie Mae is just continuing to chunk along.  She is producing white blood cells like the Little Engine That Could. 

Mary-Elizabeth's  pain is getting better overall but there are lots of little issues that we are needing to address.  This is making her feel pretty bad in general but progress is being made. 

 Lots of emotional ups and down.  The world view depends on the amount of sleep she is getting. Good movies, trash tv and online shopping is a way out of the sad places. 

The issue that has made life really difficult is her newest addiction to Platelets.  She is chewing them up as fast as they are transfused.   Her body is playing Ms. PacMan and the platelets are loosing.  They are looking at why.  They are looking to see if she has developed new anti-bodies that are rejecting the platelets.  There is a possibility that they may have to find some donors that are specific to her needs.

We talked to the doctors and they are not too worried or surprised.  They expect that she will be "platelet dependant" beyond day 100. 

So the time continues, we wait, I wait, I work on getting Mary-E fed.  I work on folding cranes, watching the ball outside the window deflate.  Maybe when it falls out of the tree, we get to leave.