Remission, Five Years Later

Sunday, September 13, 2009 marked the 5th year since remission was announced. It took a month for her to go into remission. The way it works is that they do a bone marrow aspiration, for diagnosis. Then a week of chemo therapy is administered. Seven days later they do another bone marrow aspiration. The goal is that they can achieve remission in that very short period of time. Before the chemo makes the kids sick. If you fail the first test then they schedule one 30 days post diagnosis. If the first one fails they bump up the length and intensity of treatment. You are moved from bad to very bad. Words like High Risk and extra phases of treatment are added.

Because of her age and the fact that there was a mass in her skull/brain made her High Risk to start with but the lack of remission on day 7 was a blow. It made us very nervous at the time and I didn't know what I know today. If kids don't get into remission within 2 months, they don't pass go and head directly to bone marrow transplant. No one ever wants one of those.

So on the 12th of September both of us were thinking about the 5 year mark. That was supposed to be when Mary-E received her mini cooper, the one I promised her 4 years ago. But then that was before 5 years of treatment and no license and bad juju with money and the economy. But the 5th year was still on her mind.

She quietly said to me: Mom I made it, I get to graduate from Holy Names. That is enough.

It is not often that she lets us see into those dark worrying places of her mind. Where she harbors are the years of pain and suffering and worry.

As we watched the fireworks from the ferry on Saturday night, I gave her a hug and told her they were for her. For her birthday, her remission birthday, for her survival.

Now, we wait, 5 more years before they will say she is cured.