Now, how to stay here.
For the last seven days, six nights we have been at Children's. They love how much disease has fled from her bone marrow and her high return of things like platelets and red blood cells and Neutraphils. So she started the next 42 days of therapy called Intensification
They call it intensification for a reason.
36 hours of High Dose Methotrexate given along with dexamethazone and Thioguinine. Then 12 after it ended they started72 hours of Ara-C.
So guess what? She feels really really lousy and is hunkered down waiting for her counts to drop into the basement again, and hope she does not get sick before Thanksgiving.
Then on the 29th of November we do 6 days 5 more nights of other chemo.
The donor search is on. If they find a donor, we meet with the transplant team. There is a good chance we might have to do this round of chemo again if the donor is not found, or she gets sick or..... the list of possibilities goes on.
She has a long long road ahead of her and is pretty down right now. Mary-Elizabeth is a fighter and a trooper and real sport but most of all she is a brave confident young woman realizing her worst nightmare. This has been and will continue to be the worst thing in her life. It is pretty hard to be positive all the time no matter how much that is part of your basic being.
She has a great attitude, she does everything perfectly, she listens to the doctors, she advocates for herself and she feels like she has let everyone down. She told me she was so sorry for making all of us go through this. I in turn apologized for not giving her a better set of genes.
I pulled out all the stops, Barnes and Noble, North Face and then Specialties. Did you know that each cookie is TWO servings? I really did not need to learn that today. I am going to stick to the words from House of Seven Gables:
Prolixity
Inveteracy
Irrefragably
Whencesoever
Most are not even in a modern dictionary. Got to love that.......
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