No one would notice the total imbalance of her endocrine system. A tendency to have lung issues, a loss of fertility, a loss of hair, thyroid and a myriad of other issues.
Her skin has tantrums as small rashes seem to come and go. Never really letting anyone relax. Pearl Anne is 5 years old and so like any young immune system she is unpredictable. She was unable to fight off the last cold. 6 weeks, two doses of antibiotics and prednisone and still a cough.
She has a five year follow-up next year with her favorite, Paul Carpenter, MD. They will banter, she will complain, he will ask her questions about private parts. It will be good.
I continue to feel lucky to have my child with me. I mourn and grieve over the fact she continues to suffer due to the treatment. Was it worth it, yes. Would I authorize the treatments again, absolutely. Do I know I am lucky? of course.
Yes, she is alive. Yes, she continues to grow and mature. Yes someday she can say she is a survivor. But I always worry it will return in some form or another. I wonder what live would have been had she not been radiated and poisoned and poked and prodded and tortured. What she have done with her life had four and a half of her life been spent chained to a hospital bed? What would my life had been? I guess we will never know.
We have a life. It is a good life. Progress is being made every day. I really have no complaints.
I plead every day that things continue as is....
Her skin has tantrums as small rashes seem to come and go. Never really letting anyone relax. Pearl Anne is 5 years old and so like any young immune system she is unpredictable. She was unable to fight off the last cold. 6 weeks, two doses of antibiotics and prednisone and still a cough.
She has a five year follow-up next year with her favorite, Paul Carpenter, MD. They will banter, she will complain, he will ask her questions about private parts. It will be good.
I continue to feel lucky to have my child with me. I mourn and grieve over the fact she continues to suffer due to the treatment. Was it worth it, yes. Would I authorize the treatments again, absolutely. Do I know I am lucky? of course.
Yes, she is alive. Yes, she continues to grow and mature. Yes someday she can say she is a survivor. But I always worry it will return in some form or another. I wonder what live would have been had she not been radiated and poisoned and poked and prodded and tortured. What she have done with her life had four and a half of her life been spent chained to a hospital bed? What would my life had been? I guess we will never know.
We have a life. It is a good life. Progress is being made every day. I really have no complaints.
I plead every day that things continue as is....
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