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Sunday, December 03, 2006

We are not Alone on this Journey


the path with us. I knew we had a special bond that can only come from holding another's child while a weary mother goes for a few minutes off the floor or from answering a call from a scared mom that has suddenly realized death comes to these children no matter what the science and the power of prayer. Over the last couple of years there have been times that we have felt so so isolated. No real life, no real contacts. Sneezed, coughs, a weird rash kept people away. While we have been joined on the path by complete strangers, one group that we have quietly traveled with are the other families and children that were on

Well as we are ready to step off the treatment path other's continue and their connection is very real. This morning I read the passage below and simply cried in thanksgiving and joy. It made me realize how deeply others can touch us and their success's can renew our faith in the universe that good does happen and grace is real and very very much a part of our lives. The only thing I wish is that I had met the lama!....Oh that is right, this is not about me.


A Message from the Reinfeldts

Elise’s counts today jumped from 0 to 183. Rejoice!! What this means is that the bone marrow donor’s cells have successfully found their way into Elise’s bone marrow and are beginning to make new cells. It will be just a matter of time before Elise’s mouth, throat, GI tract and more begin to heal. We just need those white blood cells to kick into overdrive. Docs say that to be “totally engrafted Elise must have three days in a row with counts at 500 or above. Shouldn't be too hard…with God all things are possible!

More exciting news, Elise’s bone marrow donor wrote her a brief letter and sent her an “angel” pin. It appears the donor is interested in letting us get to know her a bit. We pray that the day will come when we can meet her in person.

Also, a 70-year-old Tibetan lama made a special trip to the hospital to pray for Elise today. Aunt Mary's relationship with this man made this all possible. It was an experience our family will never forget. We are in awe of the diversity of humankind who dedicate themselves to healing our family – through prayer, kind words, acts of service and quality visits. The blessings are abundant and go a long way in sustaining us day after day.

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