This week-end I learned a fellow BMT kid had relapsed. I let myself believe relapse could not be possible. I understood new cancers are a huge probability but after total body radiation and high dose chemotherapy resulting in the total death and destruction of the bone marrow it was over.
Heeeeeheeee. I am wrong. Sometimes it comes back and Doctors write about it and study it.
Approaching decision-making after bone marrow transplant relapse in acute leukamia
Palliative care is not often found at a place like Seattle Children's hospital. It is sort of like the food. Lots of lip service an no real commitment. Palliative care is best understood in Hospice realm.
I have seen and I understand wanting to do one more thing, the magic thing that will make it go away. The magic deeply colored chemo just sitting on a shelf that will most certainly turn it around. I think as parents we just don't want to give up. We brought these children into the world, we are not going to let anyone or anything take them out without a fight.