Tuesday, May 27, 2014

Drinking Coffee, Watching the Birds, Gazing out the front window.

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Perpetua Tilting MT

…. Seemed appropriate today since one of our friends from Montana had their world tilted today with bad bone marrow results.  Caden is a sweet little boy that has been in cancer world for a long time and looks like he is in for some more treatment.

They are part of the group from Montana.  Alistaire is one of the kids from there.  I have met several families from Montana and did not really understand how hard it was for them to come to Seattle until I spent some time in their lovely home state.

First Montana is a continent.  It is huge.  You never feel like you are making any progress.  You can drive for days and never escape it’s boundaries.  Wide open spaces (Dixie Chicks) is a good Montana Driving Song.  

 Montana Traffic Jam.

Lots to be said about it but to have to leave and come to Seattle must be a horrendous experience.  Here is a picture of a Montana Traffic Jam.
I realize this is one of the best places to be for treatment but then any treatment for cancer is a tragedy.  It does seem like it never ends.  We all face the appointments, the scans, the pulmonary function tests, the side effects, the after effects, the long term side effects. 

Mary-Elizabeth is for all intents and purposes 2 and a half years out from transplant.  In two days we face the music and the scrutiny of the GVHD doctor.  Blood work, Pulmonary function tests.   Even as far out from transplant it is nerve racking.  


We all face these times with great trepidation and concern but in cancer World, they are a necessary evil.  The Scan Moms call it Scanphobia.  I am just worried.  That kind of worry that requires lots of extra coffee and time looking out the window in an attempt to calm myself.  It is sometimes works and sometimes I need more coffee and maybe chocolate. 

Hoping Caden's family finds good answers and can return to beautiful Grand Montana. 
 

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