Mixed Messages

October 1, 2011:

So we are tucked into Children's Hospital.  We have been here 28 hours.  It seems like a lifetime or more like two lifetimes.  So here is the update.

Hellish first night.
Lots of beeping, blood products, (platelets and packed cells)  hives, more beeping, people in and out.  Lots of blood draws, an additional IV, lots of tears, a call from the President of Gonzaga, more tears, blood draws, a visit from the fellow, some disturbing information about central lines, more tears, calls to and from family and friends, settling into the floor, finding and loosing things like bathrooms and ice machines, lots of beeping, tears, heavy sighs.  Prayers and curses and prayers and tears, more beeping, more checking of the monitors the blood pressure, the heart rate, xrays, scans, more blood work.

Sleep, finally about 1:30 am, more beeping, some sleep.  4:00 am, up with more blood work and no tears, no more left.  Calls to family regarding bone marrow transplant....

Big surgery day:  Deliver the child to the Blue Zone of Surgery.  Meet lots of doctors residents, interns and finally a person we can trust, a nurse.  Off to surgery, Bone Marrow from both hips, Spinal tap to see if cancer has snuck in there and then a Hickman.

Hickman was probably a very nice man and he is from Seattle and I love his invention.  He invented something that keeps children from having to have endless IV's and blood draws.  It is evidently okay to take toxic chemicals directly into the heart Who Knew.......

Out of surgery, more beeping machines and the such, I took a bit of a break after Johnny showed up and even went to dinner out of the hospital and braved the husky traffic so I could find a tank top that worked with Mr. Hickman.

Finally the doctor can to chat. 

ALL for sure.
No Central Nervous involvement

Chemo starts.  Something they call Blue Thunder.

Sleep.  Finally Sleep. 

I think it was that I installed a chakra chime on the IV pole.  It is much happier now.