Today Meb had an appointment with our lovely Seattle Children's Bone Marrow Doctor. She is moving to Portland Maine and this was the last time we would be seeing her. By Dr. Pollard. It was a great appointment, the taper is working, most days. Meb is getting allergies because she is weaning off prednisone. She has some spots but they have been around less than 24 hours and we are hoping they will subside.
Her kidneys are unhappy but then we have been down that road again. Hopefully she will not continue to loose kidney function. Life is good.
So while I am sitting there I spot a parent that was on and off the floor during Meb's transplant. He is stressed. He is freaked out. Then I saw his son. He is older than Meb and he is bald again. Crap... he is back in treatment. I didn't ask. There is no way this is a good thing.
I just can't get away from it. It haunts me. It terrifies me. It makes me crazy. It's a slap in the face. The ability to believe this will ever ever be over eludes me. By ignoring what goes on around me I can sometimes forget. But not in a convincing way. I am just a bundle of freaked out Mom...
But on the other hand Lulu is responding. Really responding. Her story might turn around. Sounds like her body is fighting.